Time to cure the stigma

Trauma and travails of leprosy patients

chinky

Chinky Shukla | April 18, 2012


Bhagiyalal,61, has been living in the lepers colony for the past 40 yrs.“I didn’t want my family   to be shunned by the community, so I left and came to a place where I would be more accepted.”
Bhagiyalal,61, has been living in the lepers colony for the past 40 yrs.“I didn’t want my family to be shunned by the community, so I left and came to a place where I would be more accepted.”

?Leprosy. The very word used to spell terror. It has lost some of the dread associated with it, but not the stigma. The number of people suffering from the disease has come down from 50 lakh in 1985 to 2,13,000 in 2009; but the discrimination against the patients remains.

Archaic laws continue to torment patients in India even as several countries, including Nepal and Bangladesh, repealed such laws. The International Leprosy Union (ILU) has identified 16 such laws and filed a petition before parliament’s petition committee, requesting their repeal. 

Did you know the Indian Rail Act of 1990, for example, prohibits the leprosy-affected people from travelling by train? There are laws that make leprosy a ground for divorce. The Special Marriage Act of 1954 considers leprosy “incurable”. 

Furthermore, leprosy patients are prohibited from contesting local body and panchayat elections in states like Chhattisgarh, Rajasthan, Madhya Pradesh, Andhra Pradesh and Odisha. 

The Life Insurance Corporation Act asks a higher premium from those with leprosy. The Motor Vehicles Act says leprosy patients cannot get a driving licence. 

Most of these laws date back to the British Raj when leprosy was considered highly communicable and incurable, which is not the case anymore. Our prejudices, however, remain as incurable as ever. 

(These photographs were taken at the leprosy patients’ colony in Uttar Pradesh)

 

Comments

 

Other News

Testing the teachers, moving the goalposts

A teacher was appointed in 1999, before the Right to Education (RTE) Act came into force, and appointed under the rules that existed at that time. She gave the necessary test, passed it, passed the interview, and was appointed. Over the next 26 years, she taught thousands of children, faced transfer orde

`Focus on infra, reforms, digital connectivity has created strong foundation for growth`

In a step towards the operationalisation of the Bharat Audyogik Vikas Yojana (BHAVYA), union minister of commerce & industry Piyush Goyal launched the BHAVYA Portal on Monday in New Delhi.   Addressing the gathering, Goyal said that the BHAVYA scheme will adopt a competit

Govt, RBI announce major reforms to attract FPI

The finance ministry on Friday announced a series of measures aimed at enhancing the ease of investment for individual Persons Resident Outside India (PROIs) and Foreign Portfolio Investors (FPIs), and to attract stable long-term foreign capital flows.   Building on the recent in

Lessons in climate adaption from world’s largest inhabited river island

Majuli Island, perched between the Brahmaputra River to the south and east, the Subansiri River to the west, and a branch of the Brahmaputra to the north, has been severely affected by recurrent flooding and intense riverbank erosion. Despite its global importance in acquiring UNESCO tentative status for

Careless whispers and the impossible trinity

Time can never mend, the careless whispers of …    As the RBI marches ahead, for the upcoming monetary policy meeting this June, whispers from the corridors echo around several policy options to defend the rupee – by deploying forex reserves, raising in

Bullet Train Project: Third mountain tunnel breakthrough achieved

A major engineering milestone has been achieved in the Mumbai–Ahmedabad Bullet Train Project with the successful breakthrough of the third mountain tunnel (MT-07) at Ambesari village in Dahanu Taluka of Palghar district, Maharashtra.   With this achievement, three mountain





Archives

Current Issue

Opinion

Facebook Twitter Google Plus Linkedin Subscribe Newsletter

Twitter